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Joey Bosworth's avatar

My father had Parkinson's Disease for about 15 years before passing away in 2018. I was just going to college when he was diagnosed, and had just started to shake off the teenage instinct to shun my parent's advice. He was already starting to lose the ability to share advice, experience and stories at that point, and I felt like he was always absent in most ways, even though he tried very hard. It was very hard to articulate that feeling of loss, and unexpectedly moving through experiences on your own. You did a wonderful job of that in this piece. Thank you for sharing, it made me feel less alone.

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Robert Willsea's avatar

Since I first heard you sing at Goorin Bros. hat store in Austin TX during SXSW some years ago I’ve been drawn to your music, energy, and what I perceive as honest openness and pure emotion. I’ve seen you live many, many times over the years and I always thoroughly enjoy your shows. I think the most recent was Pico in LA a couple years back w Joe Pug. (I’ve been in contact with your manager about a home show (in SoCal) when you’re back traveling again.

My wife’s early Alzheimer’s diagnosis in early 2023 devastated me beyond words. She saved me emotionally when we met years ago. I’ve been so lost and wounded as I watch her “drift away from me cognitively” these last 22 months. It’s been nothing short of soul crushing. I seek short, fleeting moments of comfort anywhere I can find them.

Sometimes music, yours included, gets me there, sometimes it cannot. I’ll leave you with some somewhat comforting words I read from Demi Moore (in dealing w Bruce Willis dimentia) - paraphrased … “You have to let go of your notion of who the person was and accept who they are now”

Honestly, it doesn’t always help. We still all want what we had (in the person) before the changes.

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